Thursday, June 18, 2009

Well, here it is in a nutshell.

Chief is in the hospital, the good news is he's not "actively dying" *I am not sure what that means*. The bad news is because he's in a posey bed, which is considered a restraint, there aren't any options as far as his care except coming home. I'd love for him to come home but there are complications with that. One is Mom. She's not mentally strong enough to take any more and physically, she's a tiny little doll next to him. Two, is the kids. Noise aggitates him. How do I tell the kids to not make any noise? The upside is he will get the best care here at home and it will be the most economically option for them financially.

Now keep in mind, this is coming off being told that he has only a few days left to live so this is quite a shock to us as we have all prepared ourselves for his passing. Again, it's great news - but man! What an emotional roller coaster. At this point, we are being told it comes down to if he will eat or not. He's not been eating much at all and they wont put in a feeding tube because he will pull it out. He's not mentally lucid to know that he needs to eat to get healthy, well as healthy as he can get. Unfortunatley with his dementia we are told there is no going back or reversing the mental state. As it stands at this very moment, if he passes it will be due to starvation. So....again, incrediably frustrating!

My son is coming along. Since starting the Ablify one month ago his moods have really stablized. He actaully seems happy! Wooo wooo what a transformation! However, he still refuses to talk to his Dad which bothers me greatly. They've went two weeks without speaking living in the same house. As it stands now, he's lived here and not spoken to his Dad for about two months. I struggle everyday on how I can help reconcile them because neither one is making any attempt *that I can see* to resolve this. It's incrediably frustrating for me!!!

On another note, the Dr. wants to increase his meds to double what he's taking now. The goal is that it would help to stablize his moods even more so. My concern is strictly financial at this point. We are not eligable for help from the manufacturer and the cost is $170 a month with inusrance for just that one medication. Typically this would not concern me, but given all that is going on with Mom & Chief we are not sure how long will have their assistance *they pay us a small amount each month to help with living costs*.

Jer says we may have to sell the house this coming Spring - a year from now. So....joy oh joy! I am going to start doing what I can to improve it. Painting the entire house, he wants to do the outside too *ugh*. It's going to be alot of work. We are even going to be putting in new bathtubs, toilets, vanities, lighting fixtures, etc etc. The house is solid but hasn't been updated since it was built in 1979.

So there it is, my life in a nutshell.

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